About Us

Our Mission

We partner with patient advocacy groups (PAGs) and physician associations to guarantee that patient perspectives are not overlooked in the drug and treatment development process. Our mission is to advocate for the integration of patient preferences in research, regulatory decisions, and clinical practices to create better healthcare outcomes for all. We believe that incorporating patient voices at every stage of drug development, from early research to final approval, leads to treatments that better align with patients’ real-world experiences and needs.

How we work

We work proactively to raise awareness through workshops, conferences, and educational initiatives that help stakeholders understand the significance of patient-centred research. By building a network of engaged patients, caregivers, and advocacy organizations, we create opportunities for meaningful dialogue and influence in decision-making processes.

Our Team

Our team comprises experts in patient preference research, clinical trial design, and health policy, all working together to promote a research landscape that genuinely incorporates patient experiences and needs. We engage with stakeholders across the healthcare ecosystem, from pharmaceutical companies to regulatory agencies, to ensure that the value of patient perspectives is fully recognised and implemented.

Natalia Bogado

Dr. Natalia Bogado is a dedicated advocate for patient-preference research and the Head of Production at SurveyEngine GmbH, where she leads the design and execution of international patient preference research projects. Her work focuses on ensuring that patient voices are not just heard but actively integrated into healthcare decision-making. She specialises in patient-centred research methodologies, working closely with patient advocacy groups, healthcare organizations, and policymakers to incorporate patient preferences into drug development, treatment evaluation, and regulatory processes.

With extensive experience consulting for corporations, government agencies, and non-profits across diverse cultural and linguistic contexts, Natalia has a deep understanding of the challenges in translating research into meaningful policy and practice. She is using this background to foster collaboration between researchers, patient groups, and industry stakeholders to ensure that patient perspectives shape the future of healthcare.

Natalia holds a Master’s degree in Political Science from the University of Auckland, New Zealand, and a Ph.D. in Behavioural Psychology from the Rhineland-Palatinate Technical University of Kaiserslautern-Landau, Germany. She has published widely on how individual attitudes and identities shape decision-making processes, insights that are crucial in understanding and addressing patient preferences in healthcare.

Ben White

Ben started working in Patient Preference studies, pioneering the measurement of health tradeoffs with the Centre for Health Economics Research and Evaluation in Sydney in the early 2000’s

His belief in the inclusion of a credible measurement of preference led to the development of methods and technology to support the emerging science of Choice Modelling along with other pioneers in the field.

Twenty years on, those methods are now part of the regulatory process, including FDA for determining the value to patients of different treatments.

Ludwig Butler

With experience in over a decade in decision modelling and market research Ludwig’s has held a passion for understanding and leveraging human behavior and preferences to drive evidence based decision.

Our Work

Our work is centred on empowering patient advocacy groups (PAGs) by providing them with the tools, knowledge, and research necessary to strengthen their advocacy efforts. Through collaborations with PAGs, we ensure that patient voices are effectively integrated into healthcare decision-making. Some key examples of our work include:

• Helping PAGs Leverage Patient Preference Research – Cairo Conference
  • We engaged with vitiligo advocacy groups at a global vitiligo conference in Cairo, delivering a presentation on how they can utilise patient preference research and data to advance their advocacy work. By demonstrating how evidence-based insights can influence regulatory decisions and treatment development, we helped this patient groups strengthen their case for patient-centred treatments.
• Bringing ‘Informal’ Alzheimer’s Caregivers into Advocacy
  • With 80% of Alzheimer’s caregivers being informal (family and friends), we supported meaningful preference research to highlight their needs and priorities. Many of these caregivers are not part of formal patient organisations, making their voices harder to capture. By working with PAGs focused on Alzheimer’s care, we helped them use this data to advocate for policies that better support caregivers and improve patient outcomes.

Our collaborations with PAGs go beyond research. We work hand in hand with advocacy groups to translate data into actionable strategies, ensuring they have access to the best tools to influence healthcare policies, treatment guidelines, and regulatory frameworks. By providing training and direct support, we enable PAGs to be more effective in their missions.

---